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Re: [OM] Season of goodwill

Subject: Re: [OM] Season of goodwill
From: Candace Lemarr <CandaceRocks@xxxxxxxxxxx>
Date: Mon, 14 Dec 2009 10:13:03 -0700
Ian,

I understand only a small part of what the special circumstances are 
surrounding the necessary care you take with Cai.
I hope that you know I did not mean to imply that my daughter's 
situation was comparable to Cai's.

I think I understand about the coughing thing, and trying to teach that 
to him, but only in a small way, My two were born without the sucking 
reflex, it hadn't kicked in yet, so we had to syringe feed them for 
about a week and a half until they learned how to suck. The things we 
take for granted. I am hopeful that Cai will learn how to cough, and 
cough well, on his own.

My daughter is doing much better, and you are right, the human body is 
astounding in what it can recover from.
She has congenital torticollis (not the same thing as those infants who 
develop this as a side effect of sleeping on their backs, see here:
http://pediatrics.aappublications.org/cgi/content/full/109/1/19 ), so 
there are still some things that we work on, balance is one thing, as 
well as continual muscle development in her upper back, neck, and 
shoulders. She had weekly physical therapy until she was 14 months old. 
She is in dance now as a way to help with her balance and muscle 
development.  This condition, in her case, is due to positioning in 
utero. As she is a twin, her brother was happy to hog much of the 
available space, while she was stuck in one spot and never moved out of 
it the entire time...so she grew a little differently. She is most 
definitely our miracle child. (But then, I think all children are 
miracles). She will also see a specialist in Feb. to assess the 
difference in bone length in her jaw. One side is millimeters shorter 
than the other. We are hopeful this will not require any invasive 
procedures, but rather manipulative things that can be done as she 
grows. I, however, find the differences in her facial symmetry to be 
fascinating. I think it adds to her attractiveness, and it makes her 
very much fun to photograph. She has so many "faces", depending on the 
angle and the direction she is turned.

She has come a very long way, even the doctors are amazed at how the 
asymmetry is less and less noticeable at each check-up.
We are grateful every single day for her progress and for the gift that 
she and her brother are to our lives.

Best wishes to you and yours. :-)

Candace 



SwissPace wrote:
>  now we just have to hope he can learn how to cough - something thats 
> very difficult to teach if you don't learn it instinctively.
>
> I hope your daughter has overcome her problems, its still amazes me from 
> what the human body can recover from and repair itself.
>   
>> Ian,
>>     
>

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